dance like an epileptic tagged posts

I THINK I’M DYING

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I went on vacation with some friends last week. One of them told me the story of his neighbor, Patrick. Patrick had died of “Sudden Unexpected Death In Epilepsy” (SUDEP) a couple of weeks earlier. It is a horrible story and, out of respect for the family, I don’t wish to go into much detail. Suffice to say, I contacted the family and they are private people who are dealing with unimaginable tragedy.

The point is, during the course of that conversation with my friends, our talks turned to the subject of death and epilepsy. My friends, none of whom are epileptic, really don’t understand the relationship seizure patients have with death.

Those of us who have to deal with the fact that we might have a seizure today, know that death is a very real possibility every time we have a sei...

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